Skip to content
Search

Latest Stories

Top Stories

Medical disinformation is bad for our health and for democracy

Executives standing with their right hands raised

Social media CEOs (from right) Mark Zuckerberg (Meta), Linda Yaccarino (X), Shou Chew (TikTok), Evan Spiegel (Snap) and Jason Citron (Discord) are sworn in to the Senate Judiciary Committee on online safety for children.

Tom Williams/CQ-Roll Call, Inc via Getty Images

Mendez is a PhD candidate in population health sciences at the Harvard T.H. Chan School of Public Health and a public voices fellow of The OpEd Project and Academy Health.

In a heated Senate Judiciary Committee hearing Jan. 31, a bipartisan group of lawmakers berated the leaders of Meta, TikTok, Snap, X and Discord about the harms that children have suffered on their platforms — threatening to regulate them out of business and accusing them of killing people.

I want this moment to be a precursor to meaningful policy change. But I’m pessimistic; we’ve been here before. Past congressional hearings on social media have covered a lot of ground, including election interference, extremism and disinformation, national security, and privacy violations. Though the energy behind this latest hearing is encouraging, the track record of inaction from our elected officials is disheartening. We’re doomed to repeat the same harms — only now the harms are supercharged as we enter a new era of artificially generated media.


One bill gaining attention in the wake of this hearing is the Kids Online Safety Act, which would require social media platforms to provide minors the chance to opt out of personalized recommendation systems and a mechanism to completely delete their personal data. Congress must aim higher than simply shielding people from these practices until they’re 18. Our elected officials must be willing to follow through on the bold assertions they’ve raised on the national stage. Are they actually willing to regulate Meta and X out of business? Are they actually willing to act like people’s lives are on the line?

Sign up for The Fulcrum newsletter

If that sounds extreme, I invite you to reflect on the past few years. In 2020, hydroxychloroquine was unscientifically promoted as a Covid-19 treatment on social media, contributing to hundreds of deaths in May and June 2020 alone. Between May 2021 and September 2022, 232,000 lives could have been saved in the United States via uptake of Covid-19 vaccines, too many people succumbed to the spread of false information on social media. In August 2022, Boston Children’s Hospital faced a wave of harassment and bomb threats following a social media smear campaign. Surely protecting children from the harms of social media includes addressing the harms of medical disinformation that leads to death and violence.

As a public health researcher, I’m attuned to prominent medical disinformation. But the harms of its spread go beyond physical health, threatening the wellbeing of our democracy. Anti-science is now a viable political platform that distracts from the needs of politically marginalized groups. Debunked Covid-19 conspiracy theories took center stage in a House of Representatives hearing last summer that sought to cast doubt on leading virologists’ research practices. Rehashing these conspiracy theories does nothing to address the long-term impacts of the Covid-19 pandemic, including the economic costs of long Covid and the higher Covid-19 death rates in rural and BIPOC communities. The mainstreaming of anti-vaccine movements in U.S politics threatens to exacerbate current disparities in other viral illnesses, such as increased flu hospitalizations in high poverty census tracts.

While medical disinformation fuels political distractions, it also overlaps with voter suppression. This means that the communities experiencing the downstream negative impacts also have less of a voice in holding elected officials accountable. Many rural voters rely on early voting, mail-in ballots and same-day registration, which have all come under attack in recent years. Stricter voter ID laws disproportionately impact communities of color. This is on top of a baseline relationship between poor health and low voter turnout.

As such, maybe it shouldn’t come as a surprise that this latest social media hearing does not promise a shift in the current balance of social media profit over care. Potential voters most impacted by these issues already have less of a voice in electoral politics. Thus these interconnected issues seem likely to balloon over the coming years, as artificial intelligence tools promise to flood our social networks with an even more unfathomable scale of content hypercharged for algorithmic discoverability. We are entering an era of robots talking to robots, with us humans experiencing the collateral damage for the sake of ad sales.

There are troubling echoes in the recent rise of a ChatGPT app ecosystem, reminiscent of the central issues of social media companies. One ChatGPT plugin offers local health risk updates for respiratory illnesses in the United States. Another helps users search for clinical trials, while another offers help to understand their eligibility criteria. Still others offer more general medical information or more personalized nutrition insights. Never mind that we don’t know the sources of data driving their responses, or why they might include some pieces of information over others. Or that we have no idea how the information they give us might be tailored based on our chat history and language choices. It’s not enough that the ChatGPT prompt window warns, “ChatGPT can make mistakes. Consider checking important information.”

But tech leaders want to have their cake and eat it too, and our elected officials seem fine with this status quo. Social media and artificial intelligence are framed as transformative tools that can improve our lives and bring people together through sharing information. And yet tech companies have no responsibility for the information people encounter on them, as if all the human decisions that go into platform design, data science and content moderation don’t matter. It’s not enough that social media companies occasionally put disclaimers on content.

Tech companies are changing the world, yet we’re supposed to believe that they are powerless to intervene in it. We are supposed to believe that we, as individuals, have the ultimate responsibility for the harms of billion-dollar companies.

It’s only a matter of time before we see a new flood of influencers, human and artificial, pushing out content at an even faster rate with the help of AI-generated scripts and visuals. A narrow focus on shielding children from these products won’t be enough to protect them from the harms of extreme content and disinformation. It won’t be enough to protect the adults in their lives from the intersecting issues of medical disinformation, political disinformation and voter suppression.

As multiple congressional hearings have reminded us, the underlying design and profit motives of social media companies are already costing lives and getting in the way of civil discourse. They are already leading to bullying, extremism and mass disinformation. They are already disrupting elections. We need and deserve a sweeping policy change around social media and AI, with an intensity and breadth that match the emotional intensity of this latest hearing. We deserve more than the theater of soundbites and public scolding.

Read More

People looking at a humanoid robot

Spectators look at Tesla's Core Technology Optimus humanoid robot at a conference in Shanghai, China, in September.

CFOTO/Future Publishing via Getty Images

Rainy day fund would help people who lose their jobs thanks to AI

Frazier is an assistant professor at the Crump College of Law at St. Thomas University and a Tarbell fellow.

Artificial intelligence will eliminate jobs.

Companies may not need as many workers as AI increases productivity. Others may simply be swapped out for automated systems. Call it what you want — displacement, replacement or elimination — but the outcome is the same: stagnant, struggling communities. The open question is whether we will learn from mistakes. Will we proactively take steps to support the communities most likely to bear the cost of “innovation.”

Keep ReadingShow less
Doctor using AI technology
Akarapong Chairean/Getty Images

What's next for the consumer revolution in health care?

Pearl, the author of “ChatGPT, MD,” teaches at both the Stanford University School of Medicine and the Stanford Graduate School of Business. He is a former CEO of The Permanente Medical Group.

For years, patients have wondered why health care can’t be as seamless as other services in their lives. They can book flights or shop for groceries with a few clicks, yet they still need to take time off work and drive to the doctor’s office for routine care.

Two advances are now changing thisoutdated model and ushering in a new era of health care consumerism. With at-home diagnostics and generative artificial intelligence, patients are beginning to take charge of their health in wayspreviously unimaginable.

Keep ReadingShow less
Close-up of boy looking at his phone in the dark
Anastasiia Sienotova/Getty Images

Reality bytes: Kids confuse the real world with the screen world

Patel is an executive producer/director, the creator of “ConnectEffect” and a Builders movement partner.

Doesn’t it feel like summer break just began? Yet here we are again. Fall’s arrival means kids have settled into a new school year with new teachers, new clothes and a new “attitude” for parents and kids alike, to start on the right foot.

Yet it’s hard for any of us to find footing in an increasingly polarized and isolated world. The entire nation is grappling with a rising tide of mental health concerns — including the continually increasing alienation and loneliness in children — and parents are struggling to foster real human connection for their kids in the real world. The battle to minimize screen time is certainly one approach. But in a world that is based on screens, apps and social media, is it a battle that realistically can be won?

Keep ReadingShow less
NVIDIA headquarters

Our stock market pivots on the performance of a handful of AI-focused companies like Nvidia.

hapabapa/Getty Images

We may face another 'too big to fail' scenario as AI labs go unchecked

Frazier is an assistant professor at the Crump College of Law at St. Thomas University and a Tarbell fellow.

In the span of two or so years, OpenAI, Nvidia and a handful of other companies essential to the development of artificial intelligence have become economic behemoths. Their valuations and stock prices have soared. Their products have become essential to Fortune 500 companies. Their business plans are the focus of the national security industry. Their collapse would be, well, unacceptable. They are too big to fail.

The good news is we’ve been in similar situations before. The bad news is we’ve yet to really learn our lesson.

Keep ReadingShow less